very early sunday 2 may Kyle update

The cardiologist came in this afternoon and spent about an hour with me, going over Kyle's echo results. It turns out he doesn't have just the one hole but three. His VSD is the one giving him problems and it is in the moderate to large size at 8 mm. The other two are the two parts of the heart that constitute the in-utero lung bypass system that are supposed to close soon after birth. His never did. They are both so small that if it was only that he would not require surgery. As it is the PDA is just contributing to the mess the VSD is creating. These results by themselves do not necissarily necesitate a speedy surgery date but he is also experiencing pulminary hypertension, or high blood pressure in his lungs. Left unchecked this can lead to irreversable damage to the arteries in his lungs. At mondays conferance our cardiologist will be suggesting we go to surgery within the week, two at most. If it is not scheduled for several days out we will most likely be able to take Kyle home for a few days since what they are doing for him in the hospital I can do at home. I've been taking a crash course on NG tubes. I successfully placed my first one yesterday after Kyle had pulled it out. Today I will be learning how to set up the pump and get his food rolling. He is still nursing for short periods every 2 to 3 hours but he gets so tired so quick he only lasts less then 10 minutes. I am very thankful he has the alternate feeding system so that he canget the nutrition he needs without expending so much energy.